The videos above are from the 5th Australian and New Zealand Dravet and Genetic Epileptic Encephalopathies Family Conference, which was held on Saturday 14 October 2017 at the Melbourne Brain Centre. While the previous four Family Conferences over the last 13 years focused on Dravet Syndrome, in 2017 we were fortunate to secure a grant from The University of Melbourne to help us extend this to all families of children with epileptic encephalopathies, and to record all talks and discussions. On the day, we had people attending in person from across Australia and New Zealand, and others were joining in via the online live-stream from the USA, UK, Canada, Australia, New Zealand, India, China, Portugal, Central Africa, and Taiwan.
Our videos start with a general overview of the genetic epileptic encephalopathies. Dravet Syndrome is the most well known, but there are many other syndromes which fall under this umbrella. There are many associated conditions that occur frequently, and families are often dealing with similar issues. The aim of this conference was to focus on practical concerns that families face on a day-to-day basis. This includes sleep, behavioural problems, educational considerations, seizure monitoring, and medication. In each session there are questions from families attending both in-person and online.
For more information on the conference and speakers please download the program.